The Macs

Thursday, January 29, 2009

an update from dad

Hey everyone, this is dad writing to you tonight. (This is my first ever blog post so if I mess up too badly please forgive me.) I am sitting beside Cora's bed, and she is finally sleeping peacfully. It has been a really long couple of days since Jess last updated, so I will try to fill you all in from where she left off.

On tuesday morning we started out the day learning that Cora had to go back into surgery. Her incision, which goes all of the way across her abdoman, was seeping abdominal fluid and therefore needed immediate attention. This was quite a shock to us since the doctors had mentioned on monday that we might be able to go home the next day. The surgery only took about 45 minutes, but Cora was a wreck the rest of the day after coming off of the anesthesia. She also started to have a lot more trouble breathing, and getting comfortable. This was due to the large amount of fluid in her abdominal cavity and lungs. The doctors also think that her liver is enlarging so rapidly that it is contributing to the problems as well. That has made for two very painful days for Cora and her parents. It is soooo hard to watch your little girl be in that much pain and distress. As a result of all of this the pediatrician the surgeons and the oncologist decided that she should start her chemo as soon as possible. So instead of starting next monday like originally planned, we moved back down to ICU around 4:30 pm wednesday to start the first treatment. The chemo will last for around 80 hours and is all administered through the cvc line that was placed in her chest during surgery. The oncologist also warned us of the many risks that go along with this first round of treatment. (That was the point of the day where both parents lost it.) The positive part of this is that if the tumor responds well to the chemo it should start shrinking things in 24-48 hours.


The one highlite of the last two days was my brother flying in from China. He got in late tuesday night. It has been so encouraging to have him around.
This is a picture of Cora taken on tuesday night. I think she is getting a bit tired of all this.
Thank you so much to all of you who have been praying, visiting, and caring for us. We would not be able to make it through all of this with out you. We have also been so overwhelmed by the number of people who are praying for us across the country and around the world. Words can not describe our grattitude. We know that prayer is powerful, and we have felt God's had in all of this. Right now we are holding onto the hope that we serve a powerful God, and that he can heal our daughter.
I Peter 5:10-11
And the God of all grace, who called you to his eternal glory in Christ,after you have suffered a little while, will himself restore you and make you strong, firm and steadfast. To him be the power for ever and ever Amen.
Here are few things to pray for.
Praise:
For an excellent team of doctors and nurses

For the thousands of people that are lifting us up in prayer
Prayer:
For a miracle
That God would minister to Cora in way that only He can
That Cora would not be in too much pain and that the chemo would not make her too sick
That the Chemo would go smoothly, and not have any of the dangerous side-effects
That the test results would come back as the more favorable type of cancer
That God would continue to give us the strength that we need to get through this.
That the cancer would start shrinking soon and give Cora some relief

152 Comments:

Blogger Liz said...

I found a prayer request for adorable Cora on Angie's blog Bring The Rain from another blogger. My heart is breaking and I can't imagine what you must be going through. I am praying for your beautiful, sweet baby that she would be comfortable and that chemo would eradicate the cancer. I am praying that you experience peace that passes all understanding.

January 29, 2009 at 6:36 AM  
Anonymous Laura said...

Hi, I just heard about your sweet Cora from another blogger. I am praying for Cora and all of you!

Laura in NC

January 29, 2009 at 6:48 AM  
Blogger Sheryl said...

Praying for Cora. Wanting to pray with a heart full of trust and belief in miracles! HE is still a miracle worker. He provides them every single day.

This mom in Michigan is praying that Cora's pain subsides and that your hearts keep clinging to HIM.

January 29, 2009 at 6:52 AM  
Blogger Pam said...

Prayed for your sweet Cora every time I woke up during the night (I'm a bad sleeper).

Peace and good news to you today,
PAm

January 29, 2009 at 7:01 AM  
Anonymous mommyesquire said...

Continuing to pray for your miracle from Philadelphia.

Megan

January 29, 2009 at 7:06 AM  
Anonymous Anonymous said...

Praying relentlessly! May the parents of this sweet baby girl continue to find hope through Christ.

January 29, 2009 at 7:11 AM  
Anonymous lifeduringnaptime said...

Praying for Cora. A little boy in our sunday school class was diagnosed with neuroblastoma a few years ago. I am so thankful to say that the LORD healed him & as of now he continues to be cancer free!!! Here is his website - please feel free to contact them for encouragement and any questions!

http://www.carterministries.com/

January 29, 2009 at 7:17 AM  
Blogger Stephanie said...

I just heard about you on another blog. I am praying for Cora!!! She is absolutely beautiful and I pray that God will heal her and that these next few days will be alittle easier on her!

January 29, 2009 at 7:26 AM  
Blogger Amanda said...

Hey guys. You all are such an inspiration to me. With all that is going on in your life right now you still want to praise and glorify God. I knew you when you were a godly couple and it is amazing to see you as godly parents! I'm praying for Cora and you guys. I just can't imagine. But I am thankful to hear that you are leaning on Christ and seeking His comfort. We're praying for you!

January 29, 2009 at 7:45 AM  
Blogger sherryLsmith said...

Romans 15:13, "Now may God, the source of hope, fill you with all joy and peace [perfect shalom] as you believe, so that you may overflow with hope by the power of the Holy Spirit."

Blessings!
sherry smith

January 29, 2009 at 7:46 AM  
Blogger Deb said...

I've also heard about your story through another blog. I'm praying for all of you.

January 29, 2009 at 8:05 AM  
Blogger The Bohrer's said...

Abigail, Isaac and Ethan prayed for Cora this morning at breakfast. They know that she is only 4 days older than Levi. They really care about her.

Heidi

January 29, 2009 at 8:14 AM  
Anonymous Stephanie Holzwarth said...

Praying you guys had a good night. Thanks for keeping us udated.
We are praying for healing in Cora's body as well as no nasty side effects!

January 29, 2009 at 8:14 AM  
Blogger PamperingBeki said...

God bless you all.

Praying constantly here.

We serve an awesome God.

January 29, 2009 at 8:18 AM  
Anonymous Anonymous said...

So glad James made it. (all I can see is two teenage boys painting David & Vera's house!).

We are praying, praying, praying.
Shana (& family)

January 29, 2009 at 8:21 AM  
Blogger C.C. and Double T said...

Continuing to pray for you and to pass on your story to everyone I can.

January 29, 2009 at 8:22 AM  
Blogger Heather @ boy, girl, and a pug said...

Just wanted you to know, that my thoughts and prayers are with you. I am currently fighting cancer also, and I have to say, I thank God every day that it is me and not my babies. I can't imagine the pain you are feeling. You are tough parents and that is one tough baby you have there.

January 29, 2009 at 8:22 AM  
Anonymous Jennifer and Jarod said...

Hey Joel and Jess,

I was just reading that same passage yesterday in I Peter and was thinking of you.

Praying lots,
Jennifer

January 29, 2009 at 8:30 AM  
Blogger beckley said...

praying for you...

January 29, 2009 at 8:32 AM  
Blogger the*4*of*us said...

My heart breaks for you all, but you are right--God is so much bigger than this!!!
Praying for all of you today.

January 29, 2009 at 8:35 AM  
Anonymous Anonymous said...

I read about Cora on another blog. I wanted you to know that I am praying for your sweet baby girl. I can't imagine how heartbreaking it must be to watch your baby go through so much suffering. We serve a mighty God, and ALL things are possible through Him!

Jolene in MN

January 29, 2009 at 8:36 AM  
Blogger Barr Family said...

I hopped over here from Angie's Bring the Rain blog and just have to say your little Cora is beautiful! My heart hurts so much for her and your family. I will be praying for sweet Cora, that the chemo will work, that Cora will be cancer-free, that she will be as comfortable as possible...and I will be praying for you guys that God will surround you with His comfort. Amanda

January 29, 2009 at 8:42 AM  
Anonymous Anonymous said...

Your extended family in CT is following along your journey and joining in prayer for beautiful Cora and each of you. God give you the strength to meet each hour with continuing hope and may He embrace Cora even more deeply in this critical time. Know that we are with you all in our thoughts, spirit and prayers. The Dumas Family -

January 29, 2009 at 8:42 AM  
Blogger Nanette said...

praying like crazy in
texas.
God bless you all.

January 29, 2009 at 8:48 AM  
Blogger Sara said...

I found a prayer request from Meg at Whatever for your so lovely Cora. My heart is in pieces thinking of Cora. She is so beautiful and God is good. He will help her heal and overcome this! My thoughts and prayers are with you!!!!!!!

January 29, 2009 at 8:52 AM  
Blogger Marla Taviano said...

Praying for a miracle for beautiful Cora and strength for her loving Mommy and Daddy!

January 29, 2009 at 8:52 AM  
Blogger Karen said...

she is just beautiful.
our hands are all holding yours.
may God take care of your precious baby and make her well again.

January 29, 2009 at 8:54 AM  
Blogger Kate said...

absolutely in my prayers... I could not imagie what you must be going through. They had suspected my middle daughter of having a brain tumor when she was just a month old. But to go through, having your worst fears confirmed, I could never imagine. I know your baby will pulll through just fine. God id in control & he will help ypu guys through this horrific phase in your life. I pray that you continue to keep God in your lives & that your baby girl makes a quick & successful recovery!

January 29, 2009 at 8:57 AM  
Blogger Scrapping Life and more said...

Sending prayers to sweet baby Cora and her family.

January 29, 2009 at 9:01 AM  
Anonymous Cristy said...

Praying and trusting Him. Knowing he can heal baby Cora!

Huge hugs to you guys today.....

Cristy

January 29, 2009 at 9:03 AM  
Anonymous Anonymous said...

I can't get your daughter's precious face out of my mind. I am praing SO hard today for that miracle and that she gets through Chemo with ease.
CARA in California

January 29, 2009 at 9:07 AM  
Blogger Pearls To Hide My Neck said...

I came to your blog from Meg's. She is precious and I will put her on our prayer chain. Just wanted you to know more will be praying for your family.

January 29, 2009 at 9:12 AM  
Blogger Erin said...

I also heard about you from another blog...praying hard for little Cora and your whole family!

January 29, 2009 at 9:13 AM  
Anonymous Joe and Cindy Frasier said...

Our church is all praying for baby Cora and your whole family. Ryan keeps us updated, as well as now viewing your blog site. Thank you for the updates and please know you are covered in prayer here in Colorado.

January 29, 2009 at 9:17 AM  
Blogger mommaof4wife2r said...

i'm here from meg's blog and i am just in prayer as i read this. may you be filled with peace and strength and i pray for a healing on that precious little cora. she's is just a beautiful girlie pie. may you all find rest and continue to bring beauty from this. great witness...

January 29, 2009 at 9:17 AM  
Anonymous Anonymous said...

Praying for a miracle for your beautiful baby girl. Our Papa loves her very much and He is a powerful God!

January 29, 2009 at 9:21 AM  
Blogger Shelly said...

Hello Cora and Family,
I found your blog through Meg. I just wanted to let you know that you are in my prayers.
Take care,
Shelly (Overland Park, KS)

January 29, 2009 at 9:25 AM  
Blogger T with Honey said...

Just wanted to let you know that I will be sending prayers up for Cora and for you, her parents.

January 29, 2009 at 9:25 AM  
Blogger wife.mom.nurse said...

You are in my prayers!
Julie

January 29, 2009 at 9:29 AM  
Blogger Brian and Staci said...

I came over from Meg's blog...I am praying for your family. God bless your little Cora. Sweet baby.

January 29, 2009 at 9:31 AM  
Blogger dmelen said...

Praying still today. And until she is healed.
Dawn

January 29, 2009 at 9:31 AM  
Anonymous Anonymous said...

PRAYING so hard, for healing, strength and courage in fighting this monster. God is Good!
Angie in Iowa

January 29, 2009 at 9:32 AM  
Blogger wenderful said...

Prayer is a powerful thing. The power of prayer can work miracles. My 10 year old son went through 3 open heart surgeries in his first 3 years and it was prayer, faith, and hope that got us through.
You are in our prayers.

January 29, 2009 at 9:33 AM  
Anonymous Anonymous said...

Marla Taviano asked for prayer for you guys and for Cora on her xanga. I will definitely be praying for strength for all of you and that God would miraculously heal sweet Cora. I will also be passing this on to my Sunday school to pray for. Praying for you!

~ Michaela in Ohio

January 29, 2009 at 9:36 AM  
Blogger The Frasiers said...

Joel, you did a great job blogging. I would read your posts anytime.
Ryan and I think about you guys constantly. Praying so hard and sending happy thoughts. ryan and lindsay

January 29, 2009 at 9:41 AM  
Anonymous Anonymous said...

I have been watching your counter. I realized that since I checked this site this morning you have had over 500 people in two hours checking in on your family and praying for Cora. That is SO powerful! PRAY PRAY PRAY!!!!!!

January 29, 2009 at 9:42 AM  
Blogger Kaleena said...

I just read about Cora on another blog. As a parent, we hope and pray that nothing like this ever happens to our precious children. I pray that the Lord will bring you peace and comfort during this trying time. I also pray that the Lord will station angels of protection around sweet Cora so that she may get healthy and cancer free. I pray the chemo is successful in killing the cancer and that one day soon you are able to take that sweet baby home-cancer free! Bless you all and may the angels be with you.
Sending love to your family and prayers to God almighty from the McNabb Family in Tennessee

January 29, 2009 at 9:44 AM  
Blogger Beth in NC said...

I am praying for your precious daughter and for the entire family.

As the Mom of a little girl, I can't imagine your pain for Cora. God bless you all.

Beth in NC

January 29, 2009 at 9:45 AM  
Blogger Maple Memories said...

I read about Cora from another blog (whatever). After reading about your journey over the past week, I was reminded of friends of ours that had a son diagnosed with Neuroblastoma a few years ago. HE BEAT THE CANCER and is a happy healthy little boy!!! They are also in Kansas. I have passed along your blog to them in hopes that they will get in touch with you. Matt and Kristi are wonderful Christian people and would be a fantastic resource and source of comfort/understanding. God bless you and your family. I will be praying, praying, praying!

Shannon

January 29, 2009 at 9:46 AM  
Blogger Sara said...

I just found your blog, I wanted to say that you are in my prayers. I absolutely cannot imagine what you are going through. My sister had a baby boy at 27 weeks, and when he came out he was 1 pound 12 ounces, and the dr's brought her in a room and told her that they had done everything they could for him, that he was so sick, they just couldn't see him making it. Today, he is making it. He has been with us for two months now and is surpassing all of the dr's expectations, every single time. He is truly a miracle. She will be ok. She will make it through this. You have a tough little girl, with some wonderful parent's who love her.

January 29, 2009 at 9:51 AM  
Blogger Kerri said...

I came over here from Sneaky Mommas blog. I am so sorry for what you are going through. Your little girl is absolutely beautiful. She looks like her Daddy. I will definitely add you guys to my prayers. I know Heavenly Father is watching over your little family. Keep the positive spirit.

January 29, 2009 at 9:52 AM  
Blogger Beth Ann said...

Praying for Cora and your beautiful family.

January 29, 2009 at 9:53 AM  
OpenID jennifergriffin said...

I heard about sweet Cora yesterday! I am praying here in Ohio!

January 29, 2009 at 9:53 AM  
OpenID talkingwithtami said...

God please watch over Cora give her strength! In Jesus name!

January 29, 2009 at 9:55 AM  
Blogger Sarah @ Thrifty Decor Chick said...

I am praying for you and your sweet girl.

January 29, 2009 at 9:57 AM  
OpenID aswewalk said...

Found you on Meg's blog. Crying and lifting up Cora and you all to the Heavenly Comforter.

January 29, 2009 at 10:03 AM  
Blogger creativecarryout said...

Praying for your little Cora and your family.

January 29, 2009 at 10:05 AM  
Blogger MMW said...

Oh My - I read about you from the blog WHATEVER. I would love to pray for your baby girl and your family and the doctors involved. Oh precious Cora. Praise God for teaching us to rely on him through trials.

January 29, 2009 at 10:10 AM  
Blogger Elizabeth said...

Hey Jess and Joel - Joel your blog was great! You should try it more often. I am praying today, as another was praying, that the Lord stations angels all around...guardian angels to watch over all of you. He is holding Cora in the very palm of His hand and that is the safest place to be. We believe in miracles and we are praying with you throughout the day. Stay strong.
Eric and Liz

January 29, 2009 at 10:12 AM  
Blogger christy said...

i followed a friend's facebook link, know that believers all over are praying with you. thank you for being a model of faith for us, but know that you have an army you have never met also standing with you.
blessings
christy

January 29, 2009 at 10:18 AM  
Blogger Renae said...

joel and jess,
we have been and will continue to lift you up in prayer! i pray that you are reminded again and again that the God of all peace and comfort is right beside you. may you feel His peace and loving arms as you continue to make decisions and persevere. we are praying that cora's little body responds well to the chemo and that her level of pain will be minimal.

love you three,
cousin ernae

January 29, 2009 at 10:20 AM  
Blogger Gail said...

You guys sure have a lot of people who love you! Thanks for pausing to update us all in the midst of your chaos. We're continuing to hold little Cora up to Jesus.

January 29, 2009 at 10:22 AM  
Blogger Kimberlie said...

Praying for sweet Cora and her family.

Kimberlie
Washington

January 29, 2009 at 10:25 AM  
Blogger Mary Jane and Jason said...

At the risk of adding to the noise...you don't know me or my wife, but know that we are praying for Cora and for the two of you
-- the broges

January 29, 2009 at 10:37 AM  
Blogger forever folding laundry said...

I heard about your beautiful Cora from Meg's blog, and wanted you to know I'm praying for her and all of your family, and will continue to do so. Cling to Him and your faith...

Keri

January 29, 2009 at 10:40 AM  
Blogger Chris said...

My thoughts are with you and Cora in this difficult time .
I send you my love and hopes for a good outcome.
Chris
Oshawa Canada .

January 29, 2009 at 10:41 AM  
Anonymous Anonymous said...

Your family is in my thoughts and prayers.

wakana in al

January 29, 2009 at 10:44 AM  
Blogger The Fabulous Side of Me said...

Hello. I came accross your site through another blogger. Sweet Cora is in our prayers. I am so sorry you all have to go through this. I hold out and believe God has good things in store for Cora and your family. Lots of prayers.

January 29, 2009 at 10:46 AM  
Anonymous Anonymous said...

I heard about Cora from Angie's blog and you have been in my thoughts and prayers since. May you find peace and comfort during this difficult time. I pray that God will heal that little body and make her well. God Bless all of you!!!
-Carey in Colorado

January 29, 2009 at 10:46 AM  
Blogger Kate said...

I received a prayer request from Amy Rosfeld for baby Cora. I just wanted you to know that I will pray for your little girl, and for the both of you and your support system. May God give you strength, peace, and the miracle of a complete recovery from cancer.
In prayer,
Kate Ediger

January 29, 2009 at 10:47 AM  
Blogger Melissa said...

Elaine at Matters of the Heart sent me over here, and I just wanted to let you know that I will be praying for your sweet baby girl that the Lord will work a miracle in her life and give you strength in the meantime!

January 29, 2009 at 10:55 AM  
Blogger *jimaie.marie* said...

I found you through megs blog and I just wanted to let you know that your sweet Cora is in my prayers every night...god bless you and your family (((hugs)))

January 29, 2009 at 11:05 AM  
Anonymous Anonymous said...

Renae sent your blog to me and asked me to be praying for your sweet Cora. I am and will continue to lift your entire family up to the Lord. May He give you a miracle and may you feel His loving embrace!!

Jenny in CO

January 29, 2009 at 11:17 AM  
Blogger The Mershawn's said...

We don't know you, but found you guys through another blog. We have a healthy 20 month old baby girl, and seeing your baby, well it hurts.
We're praying and 100% believing and standing with you for a miracle. That Cora won't have pain, she won't be sad, and that the cancer will be wiped away quickly, and that she'll live a long, beautiful life serving the Lord. We're praying for you guys too. I just can't even begin to imagine....but our God is BIG, and He can do all things!

January 29, 2009 at 11:46 AM  
Blogger Wendy said...

I'll be praying for your beautiful little girl! I've added your blog on to my blog list, so I'm hoping to get more people praying for you all.

January 29, 2009 at 11:58 AM  
Anonymous Kelly said...

Just wanted to let you know one more person is praying for you and your precious Cora. My first child's due in about two weeks, so your story is extra touching to me. I'll be praying fervently for healing and comfort for Cora and for peace for you guys.
With God's love,
Kelly

January 29, 2009 at 12:03 PM  
Blogger Julie said...

You don't know me but I'm praying for you guys. God knew when she was born what Cora would be going through today, and that is why He blessed her with such amazing parents!
Julie in Girard, KS

January 29, 2009 at 12:13 PM  
Blogger Anna said...

I am visiting from Meg's blog over at "whatever"...she sent out a prayer request for your precious Cora. My heart is aching for your family. You are in my prayers and I believe that the Lord is with you. Although it isn't easy, cast your worries upon Him. Take care!
{{HUGS}}
Anna

January 29, 2009 at 12:14 PM  
Anonymous Anonymous said...

Isaiah 40:28-29,31a
The LORD is the Creator of the ends of the earth. He will not grow tired or weary, and His understanding no one can fathom. He gives strength to the weary and increases the power of the weak...but those who hope in the LORD will renew their strength.

Praying that you feel the arms of our everlasting Father holding you all close to His heart and giving you His strength.

ryan and gina and kids

January 29, 2009 at 12:44 PM  
Anonymous Anonymous said...

I found your blog through one blog, looking at another blog from one of my friends sites. I have 17 month old daughter and cannot even imagine as a parent having to go through what you are going through. I look at your little girl & pray that she is not in very much pain & that the treatment works and the cancer goes away. You have a beautiful little girl and she doesn't deserve this but God gives us these challenges for a reason. Sometimes that reason isn't always staring at us in the face. I pray for you, your family & especially for your sweet little Cora. My aching heart goes out to you.

January 29, 2009 at 12:45 PM  
Blogger Katie Barlow said...

Wow. I just heard about Cora. I'm in tears right now and don't know what to say. I will pray for her and your family. She is a beautiful little girl.

January 29, 2009 at 12:45 PM  
Anonymous Anonymous said...

Hello, I am a relative of Jodi and Ryan Glunt. I want you to know that I will pray for your little girl. And pray for your strength to get through this time.
Aren't these blogs wonderful? They offer so much support for you.
Marty in Colorado

January 29, 2009 at 12:47 PM  
Blogger Melissa Mae Johnson said...

I wish I could do something for your family. My mom is a five time breast cancer survivor, and I know all too well what a rough path it is to watch someone you love so dearly suffer. Especially one so small and innocent! We will keep your little Cora in our prayers.

January 29, 2009 at 12:53 PM  
Anonymous Kristi Toews said...

Hello! My name is Kristi Toews and I'm from Lawrence, KS. My son had neuroblastoma as a baby (diagnosed at 5 months old) as well. He is now almost 5 years old and has been cancer-free for over 4 years! He is "normal" in every way shape and form. We have shocked a lot of people when we tell him that he had cancer as a baby. Forgive me as I haven't read through all of your posts, so I don't know a lot about your situation. Someone just emailed me and informed me about Cora just being diagnosed. I know several survivors of infant neuroblastoma!! If you'd like me to send you their websites, please let me know. Survivor stories always helped me get through my son's treatment period (4 rounds of chemo and several surgeries). I did read in your journal that Cora is under 12 months and that is GREAT. I'm sure you already know that her prognosis is so much better when you are under 12 (or some say 18) months. We received our treatment from Children's Mercy in KC. We had a great experience there. I'm leaving you with both my son's website and another infant neuroblastoma website of a good friend of mine. Please email me for any reason at any time. toewsk@yahoo.com

www.caringbridge.org/ks/babycarson
www.caringbridge.org/visit/lane

January 29, 2009 at 12:55 PM  
Blogger Carla said...

I found a prayer request on Sneaky Mama's blog and came over here to read more about your sweet girl. My heart is so sad over all Cora and you have to endure right now. I will be praying for healing and protection and will hope for a miracle. (((Hugs)))

January 29, 2009 at 1:00 PM  
Blogger colleen said...

Big Prayers for Cora from Virginia. I read on one of the blogs I follow about your sweet girl. Our daughter Ellie is 6. Last April she was diagnosed with a brain tumor (s-PNET) which is very rare & aggressive. Our world, like yours, was rocked hard. It is the hardest thing to see your child have to endure surgeries, needle sticks, radiation, chemotherapy and countless blood transfusions. But... Ellie's cancer has been one of the best things that have ever happened to us. I know that sounds bizarre and it is but we turned to God to get us through this. Our community turned to God and we were given so many signs from God. More than I ever thought possible. I KNOW GOD IS THERE and I know that we all will be OK regardless.
Ellie went to St. Jude Children's Research Hospital in Memphis because they offered us the best hope. It's an amazing place. Ellie was there posterchild this past Christmas and she brought such needed awareness to pediatric cancer. We have been finished with treatment for 2 months. It took 8 months to get through it but we were blessed and God carried Ellie through. She is doing well and we feel she will continue. We are on a 5 year wait and watch but we have learned to live in the moment and to appreciate everything.

Please let me know if you need anything or if I can offer any advice or just an ear to listen. It is a hard journey you are on but you will come out and you will be better for it. KEEP THE FAITH and ask everyone to PRAY!

Ellie's website is www.caringbridge.org/visit/ellie1

God Bless you

January 29, 2009 at 1:08 PM  
Blogger Two Blessings From Above said...

Praying for Cora!

January 29, 2009 at 1:40 PM  
Blogger Rebecca Louise. said...

I am praying that Cora responds well and will be smiling again in no time! X.

January 29, 2009 at 1:43 PM  
Blogger *Keli* said...

What a beautiful baby girl! I will definitely be praying for healing for Cora and comfort for you and your family! God is good!!!

January 29, 2009 at 1:45 PM  
Blogger Kasey said...

Praying for you and Cora.

January 29, 2009 at 2:05 PM  
Blogger Jill (Sneaky Momma) said...

Continuing to pray for that sweet little girl of yours.
Psalm 46:10 helped me out so much when the health of my unborn child was uncertain. It reminded me to stay calm and remember that He was in control of our situation. Praying for His comfort and peace as you head down tthe long road ahead.

January 29, 2009 at 2:06 PM  
Anonymous Anonymous said...

Beleiving with you for a miricale!

Love and Prayers,
Holly in OKC

January 29, 2009 at 2:08 PM  
Blogger Andrea Cartwright said...

We're friends of the Bohrer's and are praying for you in South Carolina!

January 29, 2009 at 2:12 PM  
Blogger carissa... brown eyed fox said...

our family would be honored to hold your precious Cora in prayer!

January 29, 2009 at 2:14 PM  
Blogger Sherry said...

You have been on my heart since I heard about your daughter. Praying for you constantly and your sweet, adorable baby.

January 29, 2009 at 2:15 PM  
Blogger Kristi said...

Find hope in Psalm 91. You are constantly in my prayer. In Him we have hope!

January 29, 2009 at 2:36 PM  
Blogger Patrice said...

My sister, Karen, works with you and told me about your precious Cora. Everyone in my family is saying extra prayers for her and I have started a novena to our "Infant Jesus of Prague" asking Him for a complete healing of Cora. God bless you all. Jesus We Trust In You.

January 29, 2009 at 2:36 PM  
Blogger Meghan said...

I am praying...

January 29, 2009 at 2:50 PM  
Blogger Dell5 said...

Saying a prayer for your sweet baby girl! May God heal her body so she can be a little girl again. May God also give you strength. From what I have read you are wonderful parents. Cora is so lucky! God Bless You All!

January 29, 2009 at 2:52 PM  
Anonymous Amanda said...

I would be honored to pray for your angel... I cannot imagine what you are feeling, but hope that God will speak to your very soul, and offer you the peace only He can give.

many blessings-
Amanda

January 29, 2009 at 3:07 PM  
Blogger Kalei said...

I know you have lots of support and prayers, but I am throwing one more your way. I have a friend Dave who's son Jake was diagnosed in a similar fashion. Jake is now in Remission and if you like he has a page: http://www.caringbridge.org/co/jacobtylercohen/ If you want to leave any questions or comments from one parent to another I am sure he would not mind it. Also, if you are hosting any sort of fundraiser for your son, please let me know and I can get some gift cards to throw in the basket. email me at antibloggedy@gmail(dot)com. Please give your little Cora one more set of hugs and kisses from Kalei, Kai(2yr) and Violet(10mo) who will also say a little prayer for Cora.

January 29, 2009 at 3:07 PM  
Anonymous Anonymous said...

Many prayers from Scranton, Pa!!!

January 29, 2009 at 3:08 PM  
Blogger Grandma's Blessings said...

We are praying for a miracle of healing and that each day, God would lift you up in His Wonderful Loving Hands and comfort you and protect your sweet baby Cora.
Dan and Sandy

January 29, 2009 at 3:12 PM  
Blogger Margaret said...

Praying for you and your family. We have a sweet child at our church that has been through alot and is now in remission. Miracles do happen...keep the faith.

Margaret in SC

January 29, 2009 at 3:19 PM  
Blogger laura said...

We will be praying for your family. Strength for the parents as well as for sweet Cora. Our hearts break thinking about the pain she must endure, but we know that God is good, all the time, and He will be with her as she fights this battle.
Blessings-
Laura in FL

January 29, 2009 at 3:25 PM  
Anonymous Tracy said...

To the McClenahan family: I just came across your blog through another blog that I read and I just wanted to let you know that I am praying for Cora and your entire family that she gets better very soon. Continue to have faith in our Great Lord above as he watches over all of you. God Bless You all... Hugs, Tracy from New Jersey

January 29, 2009 at 3:33 PM  
Blogger Katie said...

What a beautiful, beautiful little girl Cora is.

Praying for strength not just for Cora, but you, her parents as well. I remember all too well the heavy feelings of inadequacy that plagued as my son fought the good fight...keeping you all in my prayers. God bless you now and always.

January 29, 2009 at 3:41 PM  
Blogger belladella said...

I am praying for your precious baby girl. And I am praying for your beautiful family.

January 29, 2009 at 3:44 PM  
Anonymous Anonymous said...

Heard about your prayer request form Meg's Whatever Blog.
Wanted to let you know that I am praying right along w/ everyone else believe in a miracle for your little Cora!
I am getting people her in Illinois praying for your family.

Tenille in IL

January 29, 2009 at 3:49 PM  
Anonymous Jessica said...

I found your blog through another blogger and please know we are all praying for you and your family. I am in tears reading what you have been through and please know prayers are coming from London.

January 29, 2009 at 3:58 PM  
Blogger anna said...

i found your blog today through whatever. i am praying for you and little cora like c.r.a.z.y. may He give you peace and comfort throughout this difficult time. and Lord, please heal little cora's body!!!

January 29, 2009 at 4:04 PM  
Blogger Kelley said...

I have no words for your family. My heart aches for you. I remember seeing Cora's pictures on Meg's blog...darling. She even looks cute in the hospital! I pray that God heals your baby and you guys can move on with healed heart too!

January 29, 2009 at 4:10 PM  
Blogger Angela Miller said...

We are two years into our son Charlie's battle with NB. I can honestly say know what you are going through. I promise, once the shock wears off, you will take this in stride as it becomes your new normal. Charlie was 20 mos. at diagnosis and today he is cancer free, so there really is light at the end of this tunnel. If you ever want someone to vent to or have any questions, I'm here.

January 29, 2009 at 4:23 PM  
Anonymous Anonymous said...

I found your blog through another blogger...and all I can say is I'll be praying like crazy for your little girl! Hang in there, amazing miracles happen every day!

January 29, 2009 at 4:28 PM  
Blogger Kelly @ The Beauty of Sufficient Grace said...

I'm coming over from CT's blog and also Bring the Rain. Oh...your precious Cora is so beautiful...beyond words. My heart is breaking with and for you. Please know that I will be praying fervently for a miracle for your Cora...and for sufficient grace, comfort, and peace from our Lord who is more than able to meet your every need. Your faith is beautiful...keep holding on to Jesus. And...when you are too weak to hold on to Him...He will carry you...and He won't let go.

In His Grace,
Kelly Gerken
Sufficient Grace Ministries for Women, Inc.
Ohio

January 29, 2009 at 4:34 PM  
Anonymous Julie F. said...

I found these verses in the Psalms, and thought of you:

29 I am in pain and distress;
may your salvation, O God, protect me.

30 I will praise God's name in song
and glorify him with thanksgiving.

31 This will please the LORD more than an ox,
more than a bull with its horns and hoofs.
(Psalm 69:29-31; I left verse 31 in there hoping it might mean something to Joel:)

As you know, Jesus is with you and loves you all dearly.

January 29, 2009 at 5:20 PM  
Blogger The Morris Family said...

Cora is beautiful!!! I am sad to say we have journeyed the Neuroblastoma journey. Our 3 yr twin was dx Dec. 06 and went to be with Jesus 1/23/07. One thing to be encouraged with is that is Cora is younger, our little Joel was 3 and it is much harder. I will tell you the only way I have made it through this is by His grace, the words of scripture and now the hope that I will see my Joel again. Its a hard battle but nothing is too hard for our Lord. Keep praying and pleading, may His will be done!!
Cindy
www.weloveyoujoel.blogspot.com

January 29, 2009 at 5:33 PM  
Anonymous Anonymous said...

Hi, I am cousins with Kendall and want you to know that I am praying so hard for your precious little girl. May God wrap His arms around you all and hold you tight through this difficult time.

January 29, 2009 at 5:48 PM  
Anonymous CherryTreeLane said...

thinking of you and your family and praying that the Lord gives her, and you both, relief. He is a good God...and has a plan.

January 29, 2009 at 5:59 PM  
Blogger Elaine said...

Praying for you and your sweet baby girl.

January 29, 2009 at 6:06 PM  
Blogger Jen said...

I just found your blog... you are in my thoughts and prayers. I can't imagine what you are going through, but know that God has a plan...
God Bless!

January 29, 2009 at 6:29 PM  
Anonymous Anonymous said...

I heard about Cora through another blogger. I am so sorry that you are walking this journey. Your little Cora and you are in my prayers. Psalm 34:18 says that God is near to the brokenhearted and saves those who are crushed in spirit. I will pray that this is so for your family.

January 29, 2009 at 6:37 PM  
Blogger seabafive said...

I received an email today asking prayer for your sweet little girl. We are praying for little Cora and that she will win this battle!

January 29, 2009 at 7:16 PM  
Blogger Joanne (The Simple Wife) said...

Came from Rachel's blog at Cherry Tree Lane and adding my prayers to all those listed here.

With love,

Joanne
Denver, CO

January 29, 2009 at 7:17 PM  
Blogger Vincent Family said...

Hello, I came across your site through another blogger. Your sweet little girl is in my prayers. I cannot even imagine as a parent having to go through what you are going through. I look at your sweet little girl & pray that she is not in very much pain & that the treatment works and the cancer goes away. Stay strong!

Sarah

January 29, 2009 at 7:25 PM  
Blogger Shannan said...

I heard about your family through Meg's blog and I want you to know that I will not stop praying for you and beautiful Cora. We went through a very, very similar situation with our son almost exactly 2 years ago. He was 22 months old. It is scary and hard, but Cora is blessed to have her Mommy and Daddy and God designed that from the very beginning. He is mighty to save. Praying here-
Shannan

January 29, 2009 at 7:27 PM  
Blogger Marla Taviano said...

I've been praying for Cora all day! I'll keep going!

January 29, 2009 at 7:57 PM  
Blogger Carly Winborne said...

I just found you from "Whatever". My heart breaks for you. While I have never walked in your shoes, I do have a 3 year old little girl who used to have cheeks just like Cora. In these pictures, it was as if I was looking at my very own baby. I can't imagine what you are feeling and going through.

But we serve a mighty, loving God, don't we. And if His plans are perfect, who are we to question them? So much easier to say than to do, right? My prayer is that you'll continue to seek HIS will as you care for Cora. I pray, even now, that His will is to restore and heal your precious baby.

Cora and both your families will remain in my prayers.

Carly Winborne
Mississippi

January 29, 2009 at 8:07 PM  
Anonymous Anonymous said...

McClenahan's we are praying for you morning, noon and night.

January 29, 2009 at 8:25 PM  
Blogger June said...

We are praying for your sweet little girl.

January 29, 2009 at 8:26 PM  
Blogger Kalei said...

I hope you don't mind, I posted about you in my blog today. I took a picture of Cora from your sidebar to direct more readers to you and your family. I hope that is okay. God Bless your Ohana. Much Aloha, Antibloggedy

January 29, 2009 at 8:33 PM  
Blogger MarciaBrady said...

Hi. I made my way over from Bloggedy Blog Blog.

My heart goes out to your family! I will definitely keep Cora and your prayer requests in my prayers! I can't imagine what you're going through, but I know that God is a big God and He can bring Cora and your family through this!

God Bless!!

January 29, 2009 at 8:34 PM  
Blogger Southern Lady said...

May God bless your precious angel Cora with a miracle, and hold her close while the chemo drugs heal her little body. And may you and your family feel his arms around you lifting you up and giving you strength and comfort during the days to come.

My heart aches for you and your beautiful little Cora ...

Janie in Mississippi

January 29, 2009 at 8:35 PM  
Anonymous ashle said...

I too found a prayer request on another blog. Our family is praying for you. I have also put in a prayer request at Holy Cross Lutheran Church.

January 29, 2009 at 8:44 PM  
Blogger Emily said...

I just read about your baby doll Cora. She's such an adorable little baby and reminds me so much of mine. My heart aches for your family. I'm praying for Cora and your family.

January 29, 2009 at 8:49 PM  
Blogger Trisha said...

I just learned about your little girl from my friend Jen. I want you to know that I will be keeping your family in my thoughts and prayers.

January 29, 2009 at 8:58 PM  
Anonymous Anonymous said...

Just came across this blog....my heart is broken and I am praying for your sweet baby. Please, Lord Jesus, heal this sweet child!!
Leigh Ann in Indiana

January 29, 2009 at 9:05 PM  
Blogger Beth E. said...

Praying for Cora...

Father, may this chemo kill every cancerous cell, in the name of Jesus. Protect Cora's healthy cells, Lord, and give her relief from pain. Help her to rest this evening, allowing her parents to also rest. Help this precious family to feel Your comfort and peace. Give the doctors great wisdom. Father, I'm asking for Cora's complete and total healing. I rebuke this cancer in the name of Jesus!

Amen

Blessings to you...
Beth E.

January 29, 2009 at 9:08 PM  
Blogger beckley said...

more prayers from milwaukee

January 29, 2009 at 9:16 PM  
Blogger Kathy said...

She is precious. Count me in as another who is praying for this dear one.

January 29, 2009 at 9:17 PM  
Blogger Miss G said...

I'm praying. I came over from Meg's blog. Kelly

January 29, 2009 at 9:38 PM  
Anonymous Anonymous said...

Praying tonight for your sweet family!
Steph/Valencia, Ca

January 29, 2009 at 9:44 PM  
Blogger Mike, Chelsea and Co. said...

Your beautiful little Cora will be in our thoughts and prayers continuously.

The Ostlers in AZ

January 29, 2009 at 10:07 PM  
Blogger mommyholly said...

I just came over to your blog from Rachel at Cherry Tree Lane. I wanted to let you know that even though I don't know you all, you are most definitely in my prayers! I can't imagine what you are going through, but know that many, many people are keeping your beautiful daughter in their prayers. XOXOX Holly

January 29, 2009 at 10:11 PM  
Anonymous Patty Bichelmeyer said...

I just received an email for a prayer request for your little girl. What a beautiful baby you have, you could just spend all day kissing those cheeks! My daughter has a friend who had cancer last year, we prayed to St. Therese for her everynight and as of scans done earlier this month, she is 6 months cancer free! We will pray to St. Therese for your little Cora. May God bless you,
Patty Bichelmeyer
Merriam, Kansas

January 29, 2009 at 10:11 PM  
Blogger GrannySmithGreen said...

Please know that I will be praying for your precious Cora. God is with you always. (Matthew 28:20)

January 29, 2009 at 10:13 PM  
Blogger trinacoyle said...

As I type, the tears are falling and my heart is aching for your family. Cora, your family and the medical team that is working on her will be in our prayers here in DE. God bless and comfort you all.

January 29, 2009 at 10:26 PM  
Blogger Juls said...

We're praying for you guys like crazee!

January 29, 2009 at 10:29 PM  
Anonymous Lynn said...

Found your blog on another one. Praying for you and sweet Cora!!!!

January 30, 2009 at 6:17 AM  
Blogger My Three Sons said...

My friend Ellie Garwood sent us an email asking for prayer for Cora. I guess you have mutual friends, but have never met. Cora and your family are now in our prayers on a daily basis. I can't believe how strong you are as parents I can't imagine the pain. You have been a blessing to me, to remind me that we serve a mighty God and he is in control.

January 30, 2009 at 2:46 PM  
Blogger Tricia said...

I found your blog thru the Beauty of Sufficient Grace... I am so sorry for what you are going through, but so glad that you are clinging to Jesus through this hard time. I will be praying for all of you...

I have a prayer blog, I will add you to it so even more people can be praying for your precious family...

Blessings!

January 30, 2009 at 4:17 PM  
Anonymous Anonymous said...

Cora is a beautiful baby girl. I will be praying for all of you. I am encouraged by your faith and strength.

February 3, 2009 at 11:12 PM  

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